Tag Archives: Mothers & Daughters

The Sweet Life

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2 scoops vanillaTen years ago my mother moved into a retirement community.

For six years she lived in a lovely apartment in the assisted living section, while her dementia continued to worsen. She has spent the last four years in a slow decline, in a secured area of that same retirement community.

As her dementia has progressed, I’ve done my best to embrace each version of her.

 

My 85-year old Mother is now in the end stage of dementia.

It may have been a stroke that caused her to turn this last corner, or just the natural progression of the disease. There is no need for diagnostic tests. They would only serve to satisfy our curiosity. The end result is the same.

As they say in memory care, “there has been a significant change.”

She is completely immobile except for her left foot which she wiggles in response to touch or in time to the music of Frank Sinatra, and her left arm which she occasionally raises while sleeping, bearing a strong resemblance to Rosie The Riveter.

She is no longer verbal.

Her ability to swallow is compromised. Her liquids must be thickened and her solid food must be pureed.

Four times a day she rides a Hoyer lift, as she is moved back and forth between her bed and a reclining wheelchair.  It’s as if she has a Disneyland E ticket for an amusement park ride no one ever wants to board. She endures it all gracefully.

At the onset of this final decline, I was sad. For a few days I occasionally boo-hooed at her bedside, grieving the decade and a half that we have lived without the original version of Mom.

Once I quit feeling sorry for myself, I realized there is a certain sweetness to this stage.

There are no more repeated sentences. The questions composed of jumbled words which seemed impossible to answer appropriately, have ceased. The gibberish is gone.

At times, she has a flat expression or is just too sleepy to open her eyes. But, some days she awakens from a nap in her bed with a sweet, contented smile – much like an infant.

Other times she is bright-eyed and able to follow a conversation with her eyes. There have been silent giggles that turn into giant, yet still silent, belly laughs. These are so delightful  I don’t miss the sound of her original laugh.

Occasionally, it seems that the pathways in her brain have been magically reconnected.

When she refused to eat, we realized she was simply refusing to eat foods with a texture she didn’t like. I mean, really – not every food works in a pureed form.

She knew exactly what was going on. Her hunger strike at breakfast ended when oatmeal was taken off the menu. My sister clued the nurses in that Mom is a cream of wheat girl!

Her daily menus are now heavy on mashed potatoes, pudding, malts, and double scoops of ice cream. When she won’t eat anything…she will eat ice cream. Even when she is too tired to open her eyes, she opens her mouth awaiting the next spoonful.

These days, she really does eat dessert first.

Sure, there have been peaks and valleys as she slows down and then rallies. Any pain or discomfort is quickly soothed by the warm embrace of a morphine haze.

Always a college hoops fan, she is here for one more season of March Madness. The games serve as energetic, happy background music.

As we head into the Sweet Sixteen,  I am not entirely certain she will be here for the Final Four.

Instead, she is on the road to a long awaited heavenly reunion with her  Sweetie Pie.

Until then, we will savor the time we have left with her.

Mom will savor the ice cream. Two scoops at a time, with Hershey’s syrup.

Because, in more ways than one, life is sweet.

 

 

 

 

 

 

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The Gift Of The Moment

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IMG_5465Next month, I will be attending the Erma Bombeck Writers’ Workshop.

This is very cool for me because I have always enjoyed Erma’s writing. It is often heartwarming, always pure comic genius, and timeless. Long before I could relate my personal life experiences to her writing, I thought she was hilarious.

At the age of 50, I have a greater appreciation for her insight and her use of  humor to celebrate the ups, and cope with the downs, of life. Life is short, but some days sure seem long. The ability to see the funny in everyday life is a gift.

Even Erma’s views on the subject of humor were insightful. Some of her more famous quotes about the importance of humor are:

If you can’t make it better, you can laugh at it.

He who laughs….last.

When humor goes, there goes civilization.

I have a sentimental attachment to her writing, because it reminds me of my Mom. When I was growing up, one of us would often ask the other, “Did you read Erma today?” Together, we laughed about her column, read her books and watched her segments on Good Morning America.

During the summer, we also tuned in at 9:00 a.m. to watch The Phil Donahue Show together. Oh, the education a teen could gain from The Phil Donahue Show back then. It was THE source for information, because he covered all the thought-provoking and juicy topics.

So, Phil and Erma are forever linked together in my mind. Not only because they are former neighbors who had a mutual admiration and affection for each other, but because they were involved in a sort of 1970’s Midwestern love triangle with my mom and me. Nothin’ weird here, this was a triangle of appreciation and adoration.

erma phil diagram

We enjoyed Phil, and we loved Erma. Erma and Phil loved and adored each other.

In light of this, it is especially cool for me that Phil Donahue will be the keynote speaker at the The Erma Bombeck Writers’ Workshop.

During a visit to my hometown over the holidays, I decided to tell my Mom that I had gotten into the workshop. The former version of my Mom would have been so tickled about this. I knew the current version of my Mom, with advanced dementia, would not fully grasp what I was saying. I also knew she would have absolutely no memory of the conversation, just a minute later.

Despite being the subject of a few blog posts, including Sweetie Pie and She’s Such A Doll; she knows nothing about my blog, and has never read a single post.

So, as silly as it may be, I still wanted to share this news with her, and just enjoy the moment. 

One afternoon I sat in her room, reading the Christmas cards she had received. Some included photos or letters. (For anyone who continues to remember nursing home residents with greeting cards, may God Bless you for this kindness.) We passed the cards, photos, and notes back and forth. She was able to fondly recall at least a small detail about each friend or family member.

She was “tracking” fairly well, so I decided to share my news with her. As we chatted, she was lying on her side, atop her bed, like a teenage girl. Her elbow bent, her head propped up in her hand.

“Mom, do you remember reading Erma Bombeck?”

“Oh GAWD, yes. She’s SO funny!”

“Well, do you remember my friend, Terri?”

“Well, of course. How is she?”

I went on to explain in very simple terms, with no details, that Terri and I would both be attending the Erma Bombeck Writers’ Workshop in Dayton, Ohio.

I never even got to the part about Phil Donahue.

My Mom sat up, and said, “Really? You’re kidding?”

Wow! Had I really picked the perfect lucid moment?

Then she said, “We should call Grandma! She loves Erma, too!  She’ll go with us!”

Chatting with dementia, the trickster, is sort of what I imagine doing improvisational comedy is like: you never know which direction your partner will go next. You need to be on your toes, open to anything, think quickly, and just go with it.

We both smiled at the idea.

It was a lovely moment.

I went with it.

“Sure, that’s a great idea, Mom!”

As she slowly counted off on her right hand, she said “That’s 1, 2, 3, 4, 5 of us.”

Yep. Me, Terri, Mom, Grandma….and Erma gettin’ away for the weekend.

Of course, only three of us are actually alive, and only two of us are registered for the workshop.

Yet in some way, I feel like all five us will in fact be there.

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Laughter rises out of tragedy when you need it the most, and rewards you for your courage.

– Erma Bombeck